Make an Impact
Turning Fear into Power: Volunteering for Parkinson’s
By Amanda Salcido
There it was, “dad's test results" the subject line of an unopened email. I quickly read through, skimming to the bottom and then I saw it, “consistent with Parkinson’s disease.” I knew it was a possibility, but the kind of possibility that they are required to warn you about but never becomes reality. My dad has Parkinson’s disease. I thought my life was over because I thought his life was over. I. Was. Crushed. Fast forward three years, and I’m happy to say that the world didn’t end that night. Although, I guess I wouldn’t say it’s been easy. What has made the biggest impact was getting involved with the Parkinson’s Group of the Ozarks (PGO). My dad first started going to Rock Steady Boxing where I’ve had the honor of being the Mickey to his Rocky. Seeing other families dealing with Parkinson’s gave me some peace. Through Rock Steady, my mom became involved in more activities through the Parkinson’s Group of the Ozarks. As she started to volunteer, learn and grow in the group, she invited me to events. My mom then joined the PGO board. I’ve now volunteered for the Pound the Pavement for Parkinson’s 5K, the Parkinson’s Resource Fair, and Trivia Night through graphic design. You might see some of my work on the PGO Facebook! There are a ton of ways to volunteer. You don’t need additional training or experience with Parkinson’s, simply come as you are and use your natural talents. Simply showing up with a desire to help goes far. Volunteering won’t change your loved one’s diagnosis, but it helps take your power back. Volunteering can help turn your anger, fear and sadness into action. Volunteering is also a great way to help memorialize your loved one. And, although I was asked to write about volunteering, I really have to put the spotlight on my dad. He’s doing it. Living with Parkinson’s and still managing to be the best husband, dad, and papa. That’s why I volunteer.

Volunteering Together:
Why We Give Back
By Sid & Jeanne Carpenter
When we received the Parkinson's diagnosis, our first thought was 'great'! Now we know what's going on. We were anxious to find out what pill or therapy would be the remedy to 'fix' it. Little did we know how our lives were about to change forever. We thought we'd found our answer. What we found out very quickly was that we had only unearthed a myriad amount of further questions. Little by little we found out more...there was not ONE pill, but a host of medicines needed to manage the disease. Multitudes of therapies were needed not to provide a cure, but to MANAGE the symptoms already present and those to come. We learned that each situation is different, and that even our day to day can be different as well. We realized the impact the disease has on family members and caregivers, and we quickly found out we actually had NO IDEA about the depth of the Parkinson's well. Because knowledge is power, we set about learning as much as possible. At first, it was a gut punch without a doubt, and unlike anything we'd ever faced before. We tried to put on our happy faces, look back at what we'd been able to do in the past, and question, 'what now.' What good could come out of this change in our lives. As we discussed Parkinson's with friends and family, we found that they, too, were equally uniformed. Then as we discovered all the amazing resources available through PGO, we realized we had no idea about this, either! So, what was the common thread here....from those diagnosed with Parkinson's, they often said we had no idea about the symptoms and certainly no idea about the PGO resources. Those in the community had no idea about the reality of the disease or PGO and the value of what they offer. We discovered the extreme value of the close-knit group we could avail ourselves of through PGO. That was our light bulb of what good we might do. We could inform both those with PD and the general community. So now we try to spread the word wherever we go, both about PD and what's available to people affected by it. It is also why I serve on the Parkinson's board and we try to involve ourselves wherever we can and take advantage of many of the resources offered. It is both an enormous help to us and also a way to give back. We are so thankful.


Volunteer Opportunities
Donate your time to help the Parkinson's community.
PGO BLOG WRITER
Remote Opportunity
Must live in the US.
Contribute educational articles and/or inspirational personal stories relating to Parkinson's disease. Must have adequate writing skills and be able to email articles.
Visit our blog for examples:
Parkinson's Group of the Ozarks Blog
For more information:
417-814-6067
PGO EVENT ASSISTANT
Volunteer for one or all of the following events:
Parkinson's Resource Fair,
Trivia Night & Silent Auction, or
Pound the Pavement for Parkinson's 5K Walk/Run
Next Volunteer Opportunity:
Pound the Pavement for Parkinson's 5K Walk/Run
July 20th 8 AM-12 PM
Donate your time:
Pound the Pavement for Parkinson's 5K Walk/Run Volunteer Registration

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